I could just see my time being eaten up
trying to look for help people to give me advice
about how to cope with it
and Visibility were very good at giving me
ideas of what to do
because I stayed in Largs
I didn't have a lot of time I could
come up so I was looking for a befriender
someone that could just be there for her
I think as time goes on
I'm finding I have to give more and more of my time
It has brought my brother and I together, we were very
distant the two of us but we've had to start to work together
cause my mom would tell him one thing and tell me a different thing
so we had to start meeting up
or chatting to make sure that we were doing what was right
for my Mum. It looked to him as if I wasn't doing very much
and looked to me as if he wasn't doing very much
so when we got together we came to an understanding we will talk to one
another and make sure that we were doing what we could
but not overdoing because
I think she was becoming so reliant on us that she wasn't
doing anything else
and I think that's the difficulty
if you do too much then she doesn't do anything
and that's a danger she
She avoids big groups so if there's a big group at sheltered housing
in the lounge she'll try and avoid it because
she can't hear what they're saying so she feels left out
and we've found that if we go to
family gatherings and she can't hear
she sits and cries
so we try and put her in the middle but even when we put her in the middle
she can see what's happening but she can't hear very well
if there's music in the background
We always try to place her in the right place
but when they come they all come in a gang
so there's always a lot around rather than
just a one to one then I suppose
it's very difficult if there's lots of background noise you can't really hear
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