hey I'm Luda. I have muscular dystrophy and I'm here to share with you my life
experiences as I roll through life. enjoy! hi, so today I want to talk about things
and hacks and gifts that I've gotten that have helped me, as someone in a
wheelchair. and my hand mobility isn't so great so a lot of these these things are
really helpful and this is not really a comparison or a review of these products.
this is just me listing them. and I'm going to start with like makeup and
hygiene and stuff like that. so first, I did a video on this a couple months back
on just, on cleansers and micellar waters, and a video and I'll link
that below. but the first one is micellar water. so you do not need a sink, you do
not need extra water. just put this on the cotton and I suggest definitely washing
your face with the cleanser. I use the cera ve cleansing foam remover. I really
like this, this is really good for my oily, oily sensitive skin. now the
next item to go along with that are these square cotton things, or these circle
things. now they're great for washing your face or taking a mask off. now on a
really tired day I use makeup wipes to take anything off that I have a face
full of makeup and then I'll use some micellar water afterwards. oh if you need
some emergency shower wipes for your body there are a few brands um I've
tried this one time and they're pretty large. they're really big in size so I
usually just use one of these. and then for more like sensitive areas I use them
summer Eve's. and then in the bath or shower, I like these glove things that
you can put it on your hand, or if you have someone helping you, you can
use this. this washes really good. the next item. this was one of my very first
review videos and that was for the abri-flex diapers. now I've used these
for about a year now. I use it when I travel and I do really like it. you just
have to kind of find your, your sitting position that works for you and be
comfortable and wearing travel diapers. they do leak sometimes so you just have
to be careful about that. now going on to the toilet I have this black toilet that
I just love.
and I believe it's called, John's big toilet, and it gives you a boost like two,
three, or four inches boost and it gives you a wide seat so you have better
balance. Now speaking of hair, if you cannot take a shower and wash your hair,
there is something called the no rinse shower caps. now I will do a separate
video a reviewing this, so look for it on the link below. this is not really on
the list but, super emergency times dry a call for a dry shampoo. I don't really
recommend this too often because you really do want to wash your hair
the next day for sure because you don't want this stuff being irritated in your
school or anything like that. if the shower cap isn't really an option for
you I will also be comparing it to the shampoo washing basin. and I have no idea
how this works and I've never used them but I thought this was such a cool idea
and it was a gift from cure SMA. they sent this huge package. if you like to go to
the pool or the beach, or just need an extra towel support, I really like these
circular towels.
because instead of getting two towels, I can just have one towel. these are pretty
heavy so they can also work really well for a blanket and what I really like
about the circular towels is that I can put those around me or I can put it, if
it's over me, I can put it under my knees so that my legs don't get cold. my next
item which I don't really have on me because it's so big is this wool rug I
also got from cure sma.
I cannot sit on soft beds or soft couches. I just sink in and I can't move
and I start freaking out. this wool rug thing, I put under my bed
because it's really soft and wool is really warm and I just really like it. I
just really like it. it's not, it's soft but it doesn't make me sink into my bed.
I got this spry pillow from S-Cure SMA, and why I really love this is because one,
it's really thin. I can't really do soft big fluffy pillows. because this pillow is
really great, it's also a memory foam and it's pretty thick and comfortable. if
you're like me and you use your joystick to hold all of your 20,000,000 hair ties,
awesome for you because these are so helpful. I have tied this together to
make a rope before. I've used this to hold packages together. I've used hair
ties for literally everything. my next little tool are these manicure scissors.
now regular scissors are kind of hard to operate sometimes but these manicure
scissors, if I need open a package for my cotton thing, I can do that so much easier
than with like regular scissors. now alongside hair ties
I have carabiners just all over my chair, for my water bottle. this is for my
water bottle.
and then I have a couple just to hold my bike light thing battery.
so many people have told me to get lights on my chair because I do travel
at night
I have the multi-coloured bike thing. I believe you can only have it for about
20 hours totals but I've had them for about a year and they blasted me pretty
well. I used some of the most as maybe like an hour a night if I have to go
somewhere really far. the one thing that I forgot to mention were these metal
hooks now these are meant for tie-downs but I like to put my scissors or my
brush in there. next I want to talk about my footrest. I currently have these
socks that I put on them but they don't really last or work very well.
so I will be sewing together a little footrest cover thing for that. now what I
do have a cover for already made is my chair seat. now this is something I just
kind of sewed together with a fabric to put on my seat and then underneath it, I
just, this is like a target bag, so I put it like this and put it on my chair so
that way if I'm afraid that my diapers are going to leak, I know that my cushion
and my seat will be okay. if you've ever had cracked arm rests, this is totally for
you. now on my wheelchair, I've had my armrest armrest crack a few times.
before they start cracking you'll notice like this line coming into it and so I
used super glue, which I don't have on hand, but pretend I'm holding superglue.
so I put superglue on that armrest and then I let it dry and then the next item
I have is black nail polish, which I'll put over it and that's how I
temporarily fix my armrest because they just start cracking and breaking. I like
to reach things a really high like cereal
so I have this awesome yardstick, and it's so light, and it's so light, and it's
so just convenient because I can also push things closed, like cabinets. this is
the most helpful thing that I've ever owned. if you need to like reach a light
switch or get something else, this is awesome. now if you want something a
little bit more funner um cure SMA sent me a back scratcher
thing telescopic thing. and it is so fun to use. now why I also think this is
such a cool thing is that it comes together. so this back scratcher is so
cool cuz it becomes like a little spoon. it is a little hard to open back up, but
this is, how fun is this? like oh my gosh I'm like, take it anywhere. on to the next
item, I want to talk about these wall hooks that I have
and you can mount them anywhere you want. and just randomly put stuff on
there. you can also glue wall hooks to the wall which, I use like random places
to hang them on.
I go to a lot of conferences and I get these nametag holders. now I like this
because if I just have an errand to go to the post office or to the store, I can
just like put this on my neck. and my phone and my cash can go in here and my
grocery list in the back. now the next fun thing that's really helpful is
this phone grip. um I use on my iPad.
one of my favorite items are these remote control outlets. now, i got also this
from cure SMA. and there were three outlet, automatic controllers. they're a
little bulky, but they're really fun and you can manually turn off and on with the
switch. or it comes with two automatic controls. now speaking of remote controls,
you can have like a light or a fan remote control. the last thing is also a
cure SMA package item, and it is like a phone holder that you can put in a spot
and then just hold your phone or iPad and rotate it as you need it.
so those are all of my items. now if you have items that you think are super
useful, please comment below. hope you enjoyed this video, thanks so much for
watching. bye!
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